Legal
Important information about Light for Lucie, the use of this website, your privacy, and how donations are handled.
1. Imprint / Legal Notice
The website operator is responsible for the content of this website in accordance with applicable law.
Light for Lucie is a private initiative established to raise awareness of PRPH2-related retinal diseases and to support research aimed at developing potential treatments for people affected by PRPH2-associated retinal degeneration.
The website also provides information about donation opportunities and research activities.
Our website may contain links, embedded content or services provided by third parties, such as social media platforms, donation platforms or other external services.
When you interact with such third-party services, your personal data may be processed by those providers. Their respective privacy policies apply.
Information pursuant to applicable German law
Website:
www.lightforlucie.com
Website Operator:
Lucie and Jürgen Pressl
Am Mühlbecker Ufer 16
06774 Muldestausee
Germany
Email:
prph2fundraising@gmail.com
Responsible Person for the Content
Lucie and Jürgen Pressl
Am Mühlbecker Ufer 16
06774 Muldestausee
Germany
2. Privacy Policy
Visiting Our Website
When you visit our website, technical information may automatically be transmitted to the website server. This may include:
-
IP address
-
Date and time of access
-
Browser type and version
-
Operating system
-
Referring website
-
Pages visited
This information may be processed to ensure the technical operation, security and stability of the website.
Your Rights
Under the GDPR, you may have the right to:
-
Request access to your personal data
-
Request correction of inaccurate data
-
Request deletion of your personal data
-
Request restriction of processing
-
Object to certain processing activities
-
Request data portability where applicable
-
Withdraw consent where processing is based on consent
You also have the right to lodge a complaint with a competent data protection supervisory authority.
We retain personal data only for as long as necessary for the purposes for which it was collected, unless a longer retention period is required by law.
External Links
This website may contain links to external websites operated by third parties. We have no control over the content of these websites and cannot accept responsibility for their content.
The respective provider or operator of each linked website is responsible for its content.
Updates to This Privacy Policy
We may update this Privacy Policy from time to time to reflect changes in legal requirements or the way our website is operated.
The current version will always be published on this website.
Last updated: 18.08.2026
General Information
We take the protection of your personal data seriously.
This Privacy Policy explains how personal data is processed when you visit and use the Light for Lucie website.
We process personal data in accordance with the General Data Protection Regulation (GDPR) and applicable German data protection law.
Data Controller
The controller responsible for data processing on this website is:
Lucie and Jürgen Pressl
Am Mühlbecker Ufer 16
06774 Muldestausee
Germany
Email:
prph2fundraising@gmail.com
3. Disclaimer
We make every effort to ensure that the information provided on this website is accurate and up to date. However, we cannot guarantee the completeness, accuracy or timeliness of the information.
As a private initiative, we are not responsible for any decisions made by visitors based solely on information provided on this website.
4. Cookie Policy
Introduction
This Cookie Policy explains how our fundraising project, “Light for Lucie,” uses cookies and similar technologies on our website.
Cookies are small text files placed on your device when you visit a website. They help the site run smoothly and remember certain information about your visit.
How We Use Cookies
We use cookies for the following purposes:
1. Essential Functionality
To keep the website running securely and allow you to navigate the pages.
2. Donation Processing
To ensure that the donation links and country selection buttons (USA, Germany, Netherlands, etc.) work correctly.
3. Analytics
To understand how visitors find our site and which sections, such as our research goals or Lucie’s story, are read the most.
Third-Party Cookies
Our website may include content or features from third parties, such as video players or external donation systems. These third-party services may set their own cookies to track performance or deliver their services.
Your Choices and Control
You can control or delete cookies at any time through your internet browser settings. You can also block cookies entirely, although this may prevent some parts of our website, such as donation features, from working properly.
Contact Us
If you have any questions about our use of cookies, please contact us at: prph2fundraising@gmail.com
5. Medical Disclaimer
The information provided on Light for Lucie is intended for general information and awareness purposes only. It is not intended to replace professional medical advice, diagnosis or treatment.
PRPH2-related retinal diseases are complex and can affect individuals differently.
Information about research, clinical trials, potential treatments or scientific developments should not be interpreted as a recommendation for any particular medical treatment.
If you have questions about your health, diagnosis or treatment, please consult a qualified medical professional.
Light for Lucie does not provide medical advice and does not establish a doctor-patient relationship through this website.
Information about scientific studies and potential future treatments reflects the state of knowledge available at the time of publication and may change as research progresses.
6. Copyright / Website Content
All content on this website, including texts, photographs, graphics, logos and other materials, is protected by applicable copyright law unless otherwise stated.
Any reproduction, distribution, modification or other use of the content requires prior written permission, unless permitted by law.
© 2026 Light for Lucie. All rights reserved.
Light for Lucie is a private initiative established to raise awareness of PRPH2-related retinal diseases and to support research aimed at developing potential treatments for people affected by PRPH2-associated retinal degeneration.
The website also provides information about donation opportunities and research activities.
7. Contact
If you contact us by email or through a contact form, the information you provide will be processed solely for the purpose of responding to your request and handling your enquiry.
We will not use your personal information for purposes unrelated to your enquiry without your consent, unless required or permitted by law.
Email Here
prph2fundraising@gmail.com
8. Donation Transparency / Where Your Donation Goes
Light for Lucie itself does not process donations unless explicitly stated otherwise.
Donations from Germany and the Netherlands are handled through Maecenata, where applicable. When making a donation, the privacy policy and terms of the respective donation provider apply.
Please refer to the relevant donation platform for information about how your personal data is processed.
Every donation can help bring us one step closer to a future in which people affected by PRPH2-related retinal diseases have treatment options.
Research into rare genetic diseases often depends on dedicated funding. Your support can help researchers continue their work toward understanding PRPH2-related retinal degeneration and developing potential therapeutic approaches.
Donations from Germany and the Netherlands
Donations from Germany and the Netherlands can be made through Maecenata, where applicable. Please use the official donation option provided on this website. Your donation will support the charitable purpose specified by the respective donation organization.
Donations from Other Countries
For international supporters, donation options may vary depending on your country of residence. Please use the donation methods provided on our website or contact us if you have questions.
Thank You
Whether you donate, share our story, raise awareness or simply tell someone about PRPH2, every contribution matters.
Thank you for helping us bring light to Lucie and hope to everyone affected by PRPH2.